Samman Association

This September we have had 3 events already: An epilepsy clinic in Pen on the 17th which was attended by over a 100 patients, the support group meeting which focused on Sleep and Epilepsy on the 23rd, and on the 24th we participated in an exhibition cum sale, organized by the alumni of St. Joseph’s Convent, Bandra.

As usual we were satisfied with the turnout of the patients at Pen.  Neurologists Dr. Pravina Shah and Dr. Joy Desai, & General Practitioner Dr. Wagle attended to the patients, while Minal with Mahesh’s help in the beginning handed out files to the large number of patients who were already waiting when we arrived.  Sujatha, Mahesh and I distributed medicines.

Today we are having an epilepsy education program at Tulsi Technical Institute at Chembur.  Neurologist Dr. Jayanti Mani has kindly agreed to do the same.

Wishing you all a nice long weekend!

Carol D’Souza

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In spite of the rains 25 patients attended the epilepsy clinic held on Sunday, 30th June, at Palghar. They were attended to by Neurologist Dr Pravina Shah and General Physician Dr. Wagle and Physiotherapist Dr. Shabnam Rangwala.

Now that schools have reopened after vacations the school contact program is active again. Yesterday, 22nd July 2017 we conducted an epilepsy awareness program for the 9th and 10th standard students of Ch. Shivaji High School @ Tilak Road Ghatkopar (E). Dr. Amit Vatkar ably managed to keep his audience attentive, simplifying epilepsy and related myths and misconceptions.  He also explained about seizure first aid to the students in a manner that they understood. Most of the students from this aided Marathi medium school had witnessed a seizure at some point. The session was interactive and interesting with the students and teachers having a lot of questions that were answered.

On the same day we also had our monthly support group meeting.  We were happy to see many new faces at this meeting which focused on how to present oneself at an interview.  Pooja spoke of the importance of learning from job rejections and that one had to keep trying till success is achieved.  Carol spoke of the difference between just wanting something and actually showing great determination to get it and about the desire to excel which required hard work in one’s chosen field.  There was a lot of interaction between other members too.  It was also decided to have the meeting an hour later i.e. at 3.30 pm instead of 2.30 as many persons could not make it earlier.  So the next meeting to be held on August 19th will start at 3.30 pm and since it is close to independence day, we decided to share a few things about our country that we like / give a short narration (2 minutes each person) on the beautiful experiences or learnings we have had living in this country.

Pooja Nandi & Carol D’Souza

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Samman Association will  be having a support group meeting tomorrow at ADAPT, 1st floor, KC Marg, In front of Rang Sharda Hotel, Bandra Reclamation, Bandra West, Mumbai 400050 at 2.30 pm.  Focus of the meeting will be friendly mock interviews.  Accordingly we will recommend you for possible trainee vacancies. Please bring your bio data and a letter of application for a job you think you are suitable. Carol D’Souza


It rained and poured yesterday at Pen, yet 94 patients braved the weather and the consequent difficulty getting transport and came for the clinic.  The next clinic is going to be on 17th September and the following one in November would complete 10 years since we started the Pen clinics.  Definitely a reason to celebrate for many people with epilepsy have been helped since then. Carol D’Souza

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Another good turnout, another good meeting.  Our chosen topic this time was “Flowers and Trees in bloom in Mumbai”.  I had done a powerpoint  presentation of the flowers / trees and the audience had to guess the name after which we shared knowledge about the flower / tree.  Some pictures were sent by Samman members and  they explained about them.   The pictures were sent earlier in the day to our whatsapp group members so that they could see them even  if they could not see the PPT clearly.  We also had 3 laptops on which members could watch the presentation.  Well did you know which is Maharashtra’s State Flower? We all learnt about that one – Watch the presentation below. –

Carol D’Souza

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Kavita Shanbhag of ChildRaise has started a Disability Sensitisation tour to meet real life heroes and learn from them and their caregivers about different disabilities.  On their very first trip on 8th June 2017 they came to our Center at ADAPT, listened with rapt attention to our explanation about epilepsy and had many questions. They, of course, were very relaxed as they had just come after their visit to Metaa the Foot Spa that is managed by the Blind. Great initiative Kavita, may you achieve all success. Carol D’Souza


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