Samman Association

On 7th April ’17 , Dr. Jayanti Mani had an awareness program for the Rotary Club of Mumbai – Juhu . She spoke about epilepsy and the various initiatives of Samman Association . It was a very well received session with the Juhu Rotary members volunteering to help Samman spread awareness about Epilepsy through various forums they have access to.

Pooja Nandi

Today Pooja and I spoke at Rosary School, Dockyard Road to their High School, Primary and Pre-primary Teachers and Auxiliary staff members.  They were very receptive and felt that the talk was indeed useful.  – Carol D’Souza

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20 members attended today’s support group meeting.  I had asked Nafisa Haveliwala to write a few words about the meeting and this is what she had to say: “On my daughter Shenaz’s insistence, today I attended a Samman meeting for the first time. And I have to say it was a very good and informative discussion on “Anger and Anger Management” .  Everybody had their opinions and ways of managing anger within their capacity.  The presentation by Carol on the laptop was also too good.  Everyone spoke about how they handle their problems.  It was time well spent and I am very grateful to Carol who takes great effort and pains to do such a lot for Samman the support group, actually supporting each and every member in their endeavours.”

Pictures below uploaded with permission of Samman members. – Carol D’Souza

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Yesterday I spoke at the Rotary Club of Mumbai, Chembur branch, about Samman Association and our activities.  A Q&A session followed the talk.  Their members wanted to know if we had tied up with any previous NGO in the past and whether we would look into doing a joint activity together.  Their members were also very interested to know about epilepsy.

This morning we were invited by students of Government Law College, Mumbai for their festival ‘Shikhar’. At this festival their students sell products made by various NGOs. The festival ends on 2nd March and is open from 9am to 6.30pm. Each participating NGO was given a certificate by Adv.  Mrunalini Deshmukh who was one of the key note speakers and Guest of Honour.

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We were 23 of us at the meeting which as usual began with introductions.  Christopher and Manohar then told us of the fantastic time they had at the National Epilepsy Conference in Patna where they spoke about ‘Living with Epilepsy’ and also performed a skit at the KS Mani Session along with 6 other Mumbai Samman support group members. Their description of events in Patna, sightseeing included, made many members enthusiastic about wanting to attend the ECon 2018!

Members were then asked to speak for 2 minutes on any emotion. Anura offered to speak first and after her each member opened about the emotion they most identified with and ways they coped with the same.  All of us learnt a lot from each other.

The meeting ended with sumptuous burgers and tea.

It was a good experience today conducting an epilepsy awareness program for 25 teachers at the Gundavli – Little Flower High School.  The teachers listened attentively and had called a parent of a child who had epilepsy.  As usual we gave the epilepsy questionnaire pre and post the talk, details of which we will be analysing shortly.  We hope these awareness programs lead to ripples of awareness in the society which would lead to better first aid and treatment of people with epilepsy.

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Dr. Pradnya conducted three awareness programs back to back in 3 branches of The Symbiosis  school in Thane , Diwa and Mumbra district. Overall we spoke to an audience of approx.500 people (parents , teachers , support staff and 12th standard science students). It was heartening to see that the locals asked a lot of questions and thus made the talk very interactive . In the last session we had a parent whose son has epilepsy come and address the other parents, teachers and other students for the  support she is receiving from the school. The Principal of the schools Mr. Dev is truly a revolutionary in his own way and tries his best to keep this pocket aware and give the kids the best facilities he can. He also made the students promise that they would spread as much awareness as they could and definitely not run with Kanda and Chapal next time they witnessed a seizure. Mr. Dev also stressed upon the importance of visiting the right doctors – neurologist for the treatment. It was a day well spent indeed. – Pooja Nandi

In the cool environs of Everard Nagar Gardens, Sion, an epilepsy awareness program was jointly organized by Rotary Club of Chembur, Lok Seva Sangam and Samman Association.  Dr. Amit Watkar spoke to anganwadi and health workers of the area – about 50 of them.  After the talk they asked very relevant questions on treatment, hereditary aspect, surgery etc.  Members of the Rotary Club felt that the talk was very useful and that all schools in the area should also be thus educated – they promised their help in arranging the same.  They also invited me to talk at the Rotary Club on the 27th of this month – I look forward to it! Carol D’Souza

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. – Carol D’Souza


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