Samman Association

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Great News!!!! We have a tie up with Radio city 91.1 FM for the National Epilepsy Week. Broadcasts  on Epilepsy Myths & Facts, and Seizure First Aid.

An interview of our President, Neurologist Dr. Pravina Shah that shall be broadcast on Radio City between 3 to 5pm on 12th Nov Sunday.

There are epilepsy commercials that we have created for mass awareness about epilepsy that shall run on the channel from 14th Nov to 19th Nov.

Do listen to Radio city and let us know your feedback on the same .

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We could not have hoped for a better program.  46 people attended this session on Epilepsy & Marriage.  People came from  as far as Panvel and Thane.  We invited Marriage Counsellor Yashoda Wakankar from Pune to host this session which was both interactive and informative.   Yashoda who is Founder and Director of Epilepsy Support Group Sanvedana in Pune has been instrumental in getting 25 people with epilepsy married;

Sanvedana Foundation runs a unique activity of “Marriage Bureau for the People With Epilepsy (PWEs)“, and “Matrimonial Meets for the People With Epilepsy“. This activity started in 2008 and is probably the only one in India.   To register log on to

https://www.sanvedana.org/matrimonial/register.html

 

Yashoda Wakankar on the left

 

 

13 Members came today and though the number was small compared to previous meetings, there still was a lot of participation. The topic for discussion was ‘Money & My Relationship With It’. As usual all of us learnt from each The meeting ended with a lot of bonhomie over chai and snacks. Look forward to seeing more members at our next meeting.

Carol

Samman Association is organising an Epilepsy education program especially for newly diagnosed patients. If you haven’t already done so Please register for the same.

This September we have had 3 events already: An epilepsy clinic in Pen on the 17th which was attended by over a 100 patients, the support group meeting which focused on Sleep and Epilepsy on the 23rd, and on the 24th we participated in an exhibition cum sale, organized by the alumni of St. Joseph’s Convent, Bandra.

As usual we were satisfied with the turnout of the patients at Pen.  Neurologists Dr. Pravina Shah and Dr. Joy Desai, & General Practitioner Dr. Wagle attended to the patients, while Minal with Mahesh’s help in the beginning handed out files to the large number of patients who were already waiting when we arrived.  Sujatha, Mahesh and I distributed medicines.

Today we are having an epilepsy education program at Tulsi Technical Institute at Chembur.  Neurologist Dr. Jayanti Mani has kindly agreed to do the same.

Wishing you all a nice long weekend!

Carol D’Souza

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In spite of the rains 25 patients attended the epilepsy clinic held on Sunday, 30th June, at Palghar. They were attended to by Neurologist Dr Pravina Shah and General Physician Dr. Wagle and Physiotherapist Dr. Shabnam Rangwala.

Now that schools have reopened after vacations the school contact program is active again. Yesterday, 22nd July 2017 we conducted an epilepsy awareness program for the 9th and 10th standard students of Ch. Shivaji High School @ Tilak Road Ghatkopar (E). Dr. Amit Vatkar ably managed to keep his audience attentive, simplifying epilepsy and related myths and misconceptions.  He also explained about seizure first aid to the students in a manner that they understood. Most of the students from this aided Marathi medium school had witnessed a seizure at some point. The session was interactive and interesting with the students and teachers having a lot of questions that were answered.

On the same day we also had our monthly support group meeting.  We were happy to see many new faces at this meeting which focused on how to present oneself at an interview.  Pooja spoke of the importance of learning from job rejections and that one had to keep trying till success is achieved.  Carol spoke of the difference between just wanting something and actually showing great determination to get it and about the desire to excel which required hard work in one’s chosen field.  There was a lot of interaction between other members too.  It was also decided to have the meeting an hour later i.e. at 3.30 pm instead of 2.30 as many persons could not make it earlier.  So the next meeting to be held on August 19th will start at 3.30 pm and since it is close to independence day, we decided to share a few things about our country that we like / give a short narration (2 minutes each person) on the beautiful experiences or learnings we have had living in this country.

Pooja Nandi & Carol D’Souza

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