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At yesterday’s clinic 30 patients made it through pouring rain. Our team of neurologists and Samman supporters began the clinic at 9 am, They found the greenery around the place most soothing and came back to Mumbai feeling refreshed and happy at time well spent!

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Dr. Priyanka Pandey conducted the 4th Manav  Samman meeting on 30th July 2018. The topic was management of epilepsy through yoga. Yoga, an integral part of Indian culture and heritage, is said to bestow good health - physical, mental and spiritual - on the practitioner. There are various types of yoga involving postural exercises (asanas), breath control (pranayama) and meditation. She discussed the astang marg of yoga which includes the eight steps of yoga as follows:

yama, niyam. asana, pranayaam, dhyaan, dharna, samadhi

She also explained how Sahaja yoga, a simple form of meditation, reduced seizures and EEG changes in people with epilepsy. The effect of meditation was attributed to a reduction in the level of stress and enhance the mental and physical health of patients. All the members listened careful and practiced all the yogic asana according to the instructions given by Dr. Priyanka. At the end of session all the members reflected on their experience of the yoga session.

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Manav Samman organised its 3rd meet on 26.5.18.   Dr. Priyanka Pandey (clinical psychologist) spoke about the significance and importance of being mentally health and followed this with relevant games and activities.

Activities were as follows –

  1. ‘Know Yourself’ – each attendee spoke about themselves as well as their qualities.
  2. ‘Pick up the Token’ – under this activity people randomly picked a token paper which had been marked with an activitiy like song, dance, jokes, advertising etc. and they had to perform accordingly.
  3. ‘Yoga and meditation’- under this Dr. Priyanka guided them all on a yoga skill to promote basic concentration and followed this with positive affirmations and meditation.
  4. ‘Playing with Colors’ – in this activity each member of the Samman family put their hands into a colour plate and place it on chart paper with their autograph (see photo).

Playing games or performing certain activities is incredibly important for a personality development – helping to shape key social, creative, language, emotional, cognitive and physical processes. As a result, play therapy can help in a variety of ways, although exactly how will depend greatly on individual needs. The approach is considered particularly important for people who may have difficulty expressing themselves verbally.

Happy to inform you that our next Manav Samman meeting will be held on 30.6.18  timing 4.30 onwards.

Was very happy to celebrate Vishnu Rane’s birthday at our support group meeting yesterday.  Many people attended to focus on how they could support Samman Association – some of the ideas: an advocacy group to focus on the rights of people with epilepsy – support on social media: liking and sharing our Facebook page, Instagram and twitter feeds – taking part in on line competitions held by Samman – supporting petitions for people with epilepsy – making videos of their experiences with epilepsy –  creating artistic posts with messages that can be uploaded on social media  – suggestions for interesting topics to be discussed at support group meetings and different excursions we could take etc.  All in all, a very interesting meeting, which I hope, will create more participation.

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Do you know?
The classic ketogenic diet contains a 4:1 ratio of fat to combined protein and carbohydrate. This diet excludes high-carbohydrate foods such as starchy fruits and vegetables, bread, pasta, grains and sugar while increasing the consumption of foods high in fats such as nuts, cream, and butter. The ketogenic diet reduces seizure frequency by more than 50% in half of the patients who try it and by more than 90% in a third of patients. Children with refractory epilepsy are more likely to benefit from the ketogenic diet than from trying another anticonvulsant drug. It is not a benign, holistic or natural treatment for EPILEPSY!!!!

As, with any serious medication, therapy, there maybe complications. Common but easily treatable side effects include constipation, low- grade acidosis and hypoglycemia.

Possible therapeutic uses for the ketogenic diet have being studied for various neurological disorders in addition to epilepsy: Alzheimer’s disease (AD), amyotrophic lateral sclerosis (ALS), autism, brain cancer, headache, neurotrauma, pain, Parkinson’s disease (PD) and sleep disorders.

 

Danny Glover an American actor got his first seizure at the age of fifteen and eventually, after about 20 years, he was successful in outgrowing the condition. He said “Eventually, I could recognize it happening…Each time I got a bit stronger and the symptoms began to diminish to the point where I was ready to go on stage.” Today, Glover works to bring awareness to epilepsy by supporting the Epilepsy Foundation in America. He contributes to the organization’s programs for children and volunteers his time speaking about epilepsy and raising awareness about the issue.

(Danny Glover in the movie, ‘The Color Purple,’ as Mr. Albert)

 

PRINCE – The Late American Pop Star – was born with epilepsy; he got teased a lot in school. However, these experiences shaped his career and success. He developed a unique style and persona by being flashy and loud. His fans loved him even more when he revealed he had epilepsy.

(American Pop Singer, Prince; died on 21st April ‘16)

 

Chanda Gunn is an Olympian American ice hockey player and ambassador for ‘Athletes vs. Epilepsy’ and Epilepsy Foundation of America. Her first bout with epilepsy was a series of uncontrolled tonic-clonic (formerly called grand mal) seizures and she had to drop out of college to regain control over her epilepsy. She worked hard to prove herself and excelled. She won a bronze medal at the 2006 Winter Olympics. At the games in Turin, she played close to 250 minutes and had 50 saves with a save percentage of 89.3%! Today, Chanda lives an active life with her family. She continues to battle epilepsy but never lets it defeat her. She is highly involved in charity work. Chanda believes people living with epilepsy should support one another and encourages the community not to let seizures discourage them from chasing their dreams.

(Chanda Gunn- American Ice Hockey Player)

Don’t let epilepsy come in your way! Fight It! You’ve Got Support

JOIN SAMMAN!

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On 28th April, the Samman-Manav Kalyan team organized a support group meeting at Dahisar East. LIke the first it was very well attended, with more than 30 people present. Neuropsychologist Dr. Urvashi Shah captivated the audience with her frank, down to earth, meaningful talk on epilepsy and related psychosocial issues. From the feedback received one can say it was a huge success! Some people clarified their doubts and queries. Samman Members also spoke about how beneficial joining the group was to them. Dr. Priyanka Pandey also conducted a meditation exercise with the group. Special thanks also to the Manav Kalyan Kendra team: Neurosurgeon Dr. Mohinish Bhatjiwale, Psychologist Dr. Priyanka Pandey, Mr. Yogesh Jagtap and Mr. Abishek Mishra and to the hospital for making all the arrangements. At the end of the program Samman representative Shifa Siddiqui spoke about our Association asked the audience to raise awareness by liking our FB page and follow the instagram handle (@sammanassociation). We also gave badges which can be worn or pinned on bags, to help create epilepsy awareness.


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