Samman Association

We had a wonderful time in Deolali these last two days! It was educative and experiential. We travelled comfortably in Volvo bus (thanks to Mahesh who made all the travel arrangements) where the fun and games began! On the way stopped at Vikhroli where Dr. Pravina Shah provided tea and snacks. After reaching the Leslie Sawhny Centre in Deolali, we were given rooms and then had lunch. Everyone then had to compulsorily relax – as many, with excitement, got up at 4 am!! After tea Neurologist Dr. Joy Desai had interactive sessions on the importance of Sleep & Exercise. 40 of us listened attentively and we had many, many questions. After dinner again came enjoyment with games and dancing. And hopefully after listening to the talk on Sleep, all were in bed by 10.30 pm. The next day started with a Yoga session conducted by experienced teacher Sujata Gopalan. After a sumptuous breakfast we gathered on the lawns and for 3 hours were immersed in dance therapy by esteemed Dance therapist Devika Mehta cofounder of Synchrony (http://www.synchronyindia.com/). After another lunch we were on the bus once again and the fun continued….. – Carol DSouza

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Weekends get very busy! Last weekend we had a support group meeting on 23rd March and this was followed by the epilepsy clinic in Pen on the 24th.  107 patients were attended to in Pen by our dedicated team.  Dr. Pravina Shah and Dr. Sunanda Wagle with a team of Samman volunteers started this clinic at Kalaniketan Farms in 2007 and from 2015 our team has expanded to include neurologists Dr. Joy Desai, Dr. Jayanti Mani and Dr. Pradnya Gadgil.  Physiotherapists Dhruv and Shabnam also assist at the Clinics.

Today we had another support group meeting: we were very happy to welcome epilepsy advocate Torie Robinson from the UK.  She passionately spoke about her life with epilepsy and was keen to help us in any way she could.  Our group had a lot of questions for her ranging from mental health to marriage to work life.  Am glad we got to spend this time together.  Torie we wish you success in all that you do and wish you a safe journey back home!

Carol

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Epilepsy and Insurance was the topic at today’s support group meeting. Insurance agent and Samman member Suresh Rijhwani who has over 25 years experience in the field spoke about the Do s and Don’ts when applying for medical insurance. And the rest spoke about their experiences with medical insurance. Another person working in Insurance, Fahad, gave his views. We also discussed about travel arrangements for the Deolali workshop scheduled for March 16-17. And as yesterday and the day before were Mahesh and Kirti’s birthdays – we sang the Birthday song and celebrated with them! Carol DSouza

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Soon after I returned from the IBE strategy meeting in the UK, I was on another journey.  This time to Palghar for our rural epilepsy clinic, which was a very satisfying experience.  Our team consisted of Neurologist Dr. Pravina Shah, Pediatric Neurologist Dr. Pradnya Gadgil, General Physician Dr. Wagle, and Samman volunteers.  Patients were there by 9 am.   Though Shabnam our host was not present, all the arrangements were perfect; thanks to her caretaker Manoj Yadav.  Thanks also to Lupin for the travel arrangements.

On the same day Mumbai got ready for the marathon.  Our Samman team was up bright and early, to join the dream run, slogans and banners in place.  Once again they enjoyed the experience and shared their stories on WhatsApp. We thank them for creating epilepsy awareness.

– Carol

 

115 patients attended yesterday’s rural epilepsy clinic at Pen! The team of doctors and volunteers ensured the smooth functioning – and of course the hosts – the Kaladarshan / Parekh family! Thanks all of you!

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Carol

Yesterday, in celebration of National Epilepsy Day we saw the inspiring movie Shahid. Everyone enjoyed the movie, tea and the snacks that continuously went around. Next Saturday 24th we will be having another meeting with fun and games. Prizes will be given for the online competition as well. If you have still not taken part, pleases view it not so much as a competition but a contribution – you can, with your story, quote, learning, most certainly contribute to the growth of another! Carol

On Saturday, 27th we had a good turnout at our support group meeting. Siddhita presented on our November epilepsy awareness programs. Besides online challenges with exciting prizes to be won, we will be having 2 support group fun meetings. Please attend in large numbers and take part in our online challenges! Carol D’Souza

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